Joshua Lloyd

Please support my Ambitious challenge!

Our daughter Evie was born in 2019, six weeks early, weighing just 1.2kg (2lb 6oz). From the very start, our journey was different — beginning with a long stay in hospital, followed by her diagnosis of Rubinstein-Taybi Syndrome (RTS).

Alongside RTS, Evie was later diagnosed with autism. Since receiving that diagnosis, we have been learning about a world that is not set up for neurodivergent young people. Much of the public understanding of autism is still shaped by stereotypes, often based on boys. Girls, in particular, are incredibly skilled at masking their struggles, doing everything they can to fit in day to day — often at great personal cost.

Every parent wants the best for their child, and while nothing truly prepares you for parenthood, even less prepares you for the uncertainty that comes with additional needs. Not knowing what the future holds — how your child will cope, be understood, and find their place in the world — can sometimes feel like an overwhelming weight.

At the same time, Evie has brought immeasurable joy, happiness and fun into our lives. We are constantly in awe of her resilience, her character, and her determination. Our goal is simple: to ensure she is supported to flourish in a world that doesn’t always understand her.

The work that Ambitious about Autism does — supporting families and young people, conducting vital research, and lobbying for change — is more important than ever. In the current political climate, SEND provision and support for people with disabilities and additional needs are increasingly under scrutiny and at risk of being politicised.

On 28th June, I will be cycling from Manchester to London. It will be the longest ride I have ever undertaken and, without doubt, a huge challenge. But for many people living with autism, every single day presents challenges simply to get by in a world that wasn’t designed with them in mind.

By raising money through this ride, I hope to play a small part in helping to create a better, more inclusive future — for Evie, and for all autistic young people.